Welcome to CDKL5 UK Cure CDKL5

UK-based CDKL5 charity set up to promote relief, care and services to promote health for persons suffering from and affected by CDKL5 and raise vital funds for a global research effort. Our board is made up of parents living with a child with CDKL5 as well as family and friends who all share the same goal.

OVERVIEW

This website curecdkl5.org currently has an average traffic classification of zero (the lower the more users). We have scanned twenty pages within the site curecdkl5.org and found twelve websites linking to curecdkl5.org. There are one contacts and locations for curecdkl5.org to help you reach them. There are four public web sites enjoyed by curecdkl5.org. This website curecdkl5.org has been on the internet for five hundred and forty-one weeks, eighteen days, seventeen hours, and fifty-five minutes.
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20
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12
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1
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4
Online Since
Feb 2014

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CURECDKL5.ORG HISTORY

This website curecdkl5.org was created on February 15, 2014. As of today, it is five hundred and forty-one weeks, eighteen days, seventeen hours, and fifty-five minutes young.
REGISTERED
February
2014

LENGTH OF LIFE

10
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4
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LINKS TO WEB SITE

Findacure The Fundamental Diseases Partnership

Findacure is a UK charity that is building the fundamental diseases community to drive research and develop treatments. To make a much appreciated donation simply click the button below. Findacure follows in the footsteps of William Bateson, the father of modern genetics, who reminded us that we should treasure our exceptions . What Are Fundamental Diseases? Examples Of Fundamental Diseases.

CDKL5 Forum -

The CDKL5 Forum is a project of the Loulou Foundation.

Giving Times A Voice for Everyone

Pitch A Blog to Giving Times. Keep An Eye On Your Neighbour As Snow Sets In. Time To Talk Befriending Voted Charity of The Year. Chailey Heritage Volunteer Acknowledged in Honours List. Resource Centre Ready To Celebrate 40th Anniversary. Mental Health Nurse Running The Brighton Marathon To Support Homeless. SPARK Young Persons Network To Close Down. Companionship This Christmas Huge Success at Sussex Cricket.

CDKL5 Slovakia - občianske združenie

Najabsurdnejšie a najbláznivejšie nádeje a sny sa niekedy stávajú príčinou mimoriadneho úspechu. Pomoc rodinám zasiahnutých narodením dieťaťa s mutáciou CDKL5 génu a zvyšovanie povedomia a informovanosti o tomto ochorení.

WHAT DOES CURECDKL5.ORG LOOK LIKE?

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CONTACTS

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PO Box 795

Godalming, Surrey, GU7 9GA

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CURECDKL5.ORG HOST

I detected that a single root page on curecdkl5.org took one thousand eight hundred and eighty-five milliseconds to come up. Our web crawlers identified a SSL certificate, so in conclusion we consider this site secure.
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37.122.212.90

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SERVER OS

I identified that this website is using the Apache/2.4.29 (Unix) operating system.

PAGE TITLE

Welcome to CDKL5 UK Cure CDKL5

DESCRIPTION

UK-based CDKL5 charity set up to promote relief, care and services to promote health for persons suffering from and affected by CDKL5 and raise vital funds for a global research effort. Our board is made up of parents living with a child with CDKL5 as well as family and friends who all share the same goal.

CONTENT

This website curecdkl5.org has the following in the web page, "CDKL5 UK seeks to provide a valuable resource for all those affected by, or interested in, the CDKL5 condition." We analyzed that the website also stated " The site is divided into professional and family zones to help you navigate more quickly to the information you require." It also stated " We hope that professionals, families, and carers alike will find information to assist you in navigating your way around this complex disorder. Im a family member or carer."

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